Seizures. All day. ALL day.

Talk about relentless all day, the seizures were constant and I couldn’t do a thing about them. Each seizure left me more exhausted than the last. I had two in the morning, which left me in bed as they came with paralysis on my left hand side. Then another one at 6 pm, which is why I’m finding it so hard to type things out. So why do a post? Stubborn, mostly. Since I was bedridden, I slept on and off all day, so my body clock is out. It’s 2.52 am here.

So, I’m feeling better about the divorce and the fact that, at least on my part, we are still friends. Even if it’s for the kids’ sake, they are old enough to understand. Besides, they get an extra birthday, extra Christmas. I’m still around a few days every week. Ugh, this is annoying. Whenever I type, it’s missing letters. Hopefully, the spell check will find them. Additionally, I’ve realized how my seizure sometimes makes writing difficult for me.

The jerking is still the most annoying side of this whole thing. Imagine someone following you who randomly pushes your arms out. A single sudden seizure episode can cause me to lose control unexpectedly. So reaching for a drink makes you tip it out or drop food. All sorts, so you just say sorry all the time; I hate it.

I’ll stop before the rambling gets worse. By the way, living with seizure effects is undoubtedly frustrating.

Queen – Save Me

It started off so well
They said we made a perfect pair
I clothed myself in your glory and your love
How I loved you
How I cried
The years of care and loyalty
Were nothing but a sham it seems
The years belie we lived a lie
I love you till I die
Save me save me save me
I can’t face this life alone
Save me save me save me
I’m naked and I’m far from home

The slate will soon be clean
I’ll erase the memories
To start again with somebody new
Was it all wasted
All that love?
I hang my head and I advertise
A soul for sale or rent
I have no heart I’m cold inside
I have no real intent
Save me save me save me
I can’t face this life alone
Save me save me save me
Oh I’m naked and I’m far from home

Each night I cry I still believe the lie
I love you ’till I die
Save me save me save me
Save me save me oh save me
Don’t let me face my life alone
Save me save me oh
I’m naked and I’m far from home

queen battle black blur board game
Photo by Pixabay on Pexels.com

Random Musings

So random thoughts and musings going on in my mind today. I saw R today; her mum dropped her off at D’s house. We walked down to a local cafe and had lunch, cake, and tea. Well, she had a smoothie.

Shit. Seizuring. Not long, 1 minute. Listening to music, and when that happens, it’s a weird one. There I am, listening to a song, and then poof minute gone. I’m not surprised that it’s happening; it’s late, and I had a busy day. But yes, a nice little reminder “hi fnd is stiill here have a zap”. My hands are still numb, but it’s spread to my palm on my left hand; the right hand isn’t as bad now, but oddly my little toe is numb as well, which is completely random. I’ll make an appointment with the GP tomorrow.

The motel

~~Exciting development in the motel. I heard rats outside my window. Squeaking away as they scuttled around. I know they have rat traps, but yeah. Fun. So I’m keeping the window closed and guarding my stash of noodles, tuna, and salmon.

One night when I came back late, this must have been a week ago now, I walked into the motel and this guy was standing close behind me. As it was after curfew, I had to type the code on the keypad. So I started to worry as the guy was standing quite close, like he was going to run in after me. So I stared at him, he showed me his key. He doesn’t speak a word of English, is black, and looks like he’s from Africa as he has a twinge of a French accent. So that’s just by the way. I showed him the code and showed him how to get in. Turns out he’s my next-door neighbor with bad habits. I can hear him constantly making weird, random noises. Wailing, giggling, sighing really loudly. Now I have to shake my legs constantly, so tapping. The problem is my desk is against his wall, so I know that when I shake, I’m then shaking something in his room. I started doing it more and more while he still makes odd noises. Then I can hear him moving things, looking for the source. It amuses me. Simple things.~~

In closing…

struggling to type at the moment. They keep happening. I’ll go lay in bed and stare at the ceiling for a bit. Oh, and still no heating. My caseworker has been in touch with the housing team to get them to ask why it isn’t on. Most hotels I have been in always have the heating on, and you just set the thermostat to what you need. Anyways, random. Sums up this place. Don’t get me wrong, I’m happy here, I have a bed instead of a sofa, and now with an electric blanket, it keeps me warm.

random white pills spilled on table
Photo by Alex Green on Pexels.com